Hot Seat: Cerebral Palsy Awareness Month

Dr. Amber Stocco, a pediatric neurologist and medical director of child and adolescent neurology at Bethany Children’s Health Center, is raising awareness about cerebral palsy as part of Cerebral Palsy Awareness Month.

Cerebral palsy, Stocco explained, is a condition affecting the brain’s motor system. It can manifest as weakness, tightness, or abnormal movements, and it typically develops in children under the age of two. The disorder is non-progressive, meaning symptoms do not worsen over time.

Stocco says the sooner you detect cerebral palsy, the better the outcome can be.

"We believe there's a critical window where the brain is very plastic, meaning that they can learn and rewire, and we want to take advantage of that," she said.

As part of the month’s observance, Bethany Children’s Health Center is hosting a cerebral palsy conference on March 29, 2025, bringing together experts and families to discuss new research, therapies, and community support resources.

Families of children with cerebral palsy often face social isolation, Stocco said. The severity of the condition varies widely—some children have mild mobility or speech challenges, while others may struggle with communication or movement. “It’s not rare,” Stocco said. “About three to four per 1,000, so there's a good chance that there's another child in their school, but there may not be, depending on the school district.

Education about cerebral palsy is key, she said, as many people assume all cases involve children in wheelchairs who cannot communicate. “That’s just not true,” she said. “Some children are cognitively completely normal or even advanced. I've worked with several doctors who have cerebral palsy, and again, are brilliant."

Advancements in treatment options have improved outcomes for children, including deep brain stimulation for those with dystonia, surgical interventions for spasticity, and expanded medication options. However, Stocco emphasized that therapy remains the most important factor in treatment. “We really appreciate occupational therapists, physical therapists, and speech therapists who help make the most gains.”

The upcoming conference will provide families with information on publicly and privately funded resources, adaptive sports programs, and support groups.

“We want these kids to feel a part of their schools, a part of their communities, their sports teams, and we can do that. A lot of these kids are amazing," she said

The conference will feature multiple breakout sessions tailored to different age groups, from early diagnosis to transition into adulthood. Dr. Brandenburg, whose daughter has cerebral palsy, will be a keynote speaker, along with her daughter, who hosts a podcast highlighting the capabilities of individuals with cerebral palsy.

The event will take place from 9 a.m. to 1 p.m. at Bethany Children’s Health Center.

More information and registration details can be found at Bethanychildrens.org/events.